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Item type:Publication, Standards for Psychosocial Care in Pediatric Cancer: Adapted Proposal for Latin American and Caribbean Countries(Pan American Health Organization, 2023-01-01)To highlight the objectives, achievements, challenges, and next steps for the World Health Organization's Global Initiative for Childhood Cancer (GICC) framework, a project designed to improve psychosocial care (PSC) in pediatric cancer centers across Latin America and the Caribbean (LAC). Methods: The project was launched in Peru, the first GICC focal country, in November 2020. The diagnosis phase included a survey and a semistructured interview with health professionals to assess PSC practices in institutions, and a needs assessment survey for caregivers. In the second phase, a strategic plan was developed to address the identified needs, including the adaptation of PSC standards, the establishment of multicenter working groups, the expansion of the proposal, and the development of materials. Results: The study found that PSC was not being adequately provided in accordance with international standards. Six adapted standards were proposed and validated, and more than 50 regional health professionals participated in online activities to support the project. The implementation process is currently ongoing, with the establishment of five multidisciplinary working groups, one regional committee, and the production of 16 technical outputs. Conclusion: This project represents a substantial step forward to improve PSC for pediatric patients with cancer and their families in LAC countries. The establishment of working groups and evidence-based interventions strengthen the proposal and its implementation. Development of health policies that include PSC according to standards is needed to achieve sustainable results in the quality of life of children with cancer and their families. - Some of the metrics are blocked by yourconsent settings
Item type:Publication, Collaboration for Success: The Global Initiative for Childhood Cancer in Latin America(Pan American Health Organization, 2023-01-01)The Global Initiative for Childhood Cancer (GICC) aims to increase the cure rate for children with cancer globally by improving healthcare access and quality. The Pan American Health Organization (PAHO), St. Jude Children’s Research Hospital (St. Jude), and collaborators have joined efforts to improve outcomes of children with cancer in Latin America and the Caribbean (LAC) using the CureAll framework. In this article, we describe the process of developing regional resources aimed at accelerating the GICC implementation in LAC. In March 2021, PAHO formed regional working groups to develop core projects aligned with CureAll pillars and enablers. Seven working groups emerged from regional dialogues: early detection, nursing, psychosocial, nutrition, supportive care, treatment abandonment, and palliative care. PAHO arranged regular online meetings under the mentorship and support of St. Jude regional/transversal programs and international mentors. Between April and December 2021, 202 multidisciplinary experts attended 43 online meetings to promote the dialogue between stakeholders to improve childhood cancer outcomes. Fourteen technical outputs were produced: four regional snapshots, four technical documents, two virtual courses, one set of epidemiological country profiles, one educational content series for parents/caregivers, and two communication campaigns. The ongoing dialogue and commitment of PAHO, St. Jude, LAC working committees, and international collaborators are essential foundations to successfully accelerate GICC implementation. This is achievable through the development of materials of regional and global relevance. Further research and evaluation are needed to determine the impact of these strategies and resources on childhood cancer outcomes in LAC and other regions. - Some of the metrics are blocked by yourconsent settings
Item type:Publication, Childhood Cancer Survivors in Latin America: Insights Into Health Outcomes and Information Needs(Wiley, 2025-09-01)BACKGROUND: Childhood cancer survivors (CCSs) face long-term health challenges, yet the health and specific needs of Latin American survivors remain underexplored. This study aimed to describe the health-related, psychosocial late effects, and information needs among CCSs in the region. METHODS: This mixed-method study combined quantitative data from an online survey with qualitative insights from follow-up interviews, involving CCSs from the largest regional survivor network and additional participants recruited through snowball sampling. We report the quantitative results here. The survey was adapted from the Childhood Cancer Survivor Study Survey Follow-Up and the Needs Assessment Questionnaire (CCSS-NAQ). RESULTS: A total of 135 CCSs from 16 Latin American countries participated (mean age 26.1 years). The most frequent late effects were mental health (61.2%), endocrine (58.6%), and cardiovascular (42.1%). Infertility was prevalent (16.9%), with nearly one-third unsure of their fertility status. Anxiety (51.1%) and depression (31.8%) were common. Significant findings included higher rates of endocrine disorders in females (p = 0.0018) and those who had received radiation (p = 0.048), respiratory problems in stem cell transplantation recipients (p = 0.026), and auditory impairment in survivors of a solid tumor (p = 0.0031). While most felt informed about their health, only one-third had regular medical follow-up and access to psychological care. Survivors expressed a strong interest in learning more about fertility and mental health, with a preference for digital information. CONCLUSIONS: The study documents the need for region-specific survivorship care that addresses both the physical and mental health challenges of Latin American CCSs.1