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Item type:Publication, Research priority-setting is an ethics exercise: Lessons from the Global Forum on Bioethics in Research for the Region of the Americas(Pan American Health Organization, 2024-01-01)La priorización de la investigación es un ejercicio ético: lecciones del Foro Global de Bioética en la Investigación para la Región de las Américas - Some of the metrics are blocked by yourconsent settings
Item type:Publication, Ethical standards for research involving persons with mental disabilities pursuant to the Convention on the Rights of Persons with Disabilities: A proposal(Pan American Health Organization, 2024-01-01)International ethical standards for research involving persons who have diminished decision-making capacity allow for delegation of the decision to participate in research to a representative who can act as a surrogate decision-maker. However, this approach has been questioned by the Convention on the Rights of Persons with Disabilities (CRPD), according to which all persons with disabilities, regardless of their mental or neurological condition, always have universal legal capacity to make decisions. The incompatibility between ethical standards and the CRPD is clear and impacts the conduct of research involving people with mental disabilities, which is essential for the improvement of their health and well-being. This article advances a proposal that seeks to reconcile the CRPD with ethical standards for informed consent processes in research and provides practical recommendations, especially for Latin American countries that still face challenges in implementing the CRPD in the research field.